Building Trust was developed as a bioethics research initiative designed to address the underrepresentation of many minority groups in research.
A main goal set forth by the Building Trust project was to create training and educational programs designed to increase the participation of minorities in public health and biomedical research and to strengthen the capacity of researchers and community members to work effectively with each other. We have developed two curricula to help achieve this goal, one for community members — entitled Enhancing Minority Engagement in Research and represented on this website — and one for investigators, research staff, and IRB members — entitled Becoming a Self-Reflective Researcher: Successfully Engaging Minority Communities.
Becoming a Self-Reflective Researcher: Successfully Engaging Minority Communities Curriculum
This curriculum is designed for researchers, researcher staff, IRB members, and health professions students. The program will strengthen the capacity of researchers to effectively recruit and retain minority participants in research. Through seven interactive modules, participants will respond to trigger films, discuss complex ethical research issues, and practice skills for enhancing recruitment, retention, informed consent, and the development of community partnerships. This facilitator-led curriculum can be used in settings such as academic health centers, health sciences schools, research centers, and government agencies.
The curriculum modules are:
- Research, Race, and Social Justice
- In this module, participants will examine how social and historical context impact researchers’ engagement with minority communities.
- Case Studies in Ethically Complex Research
- Participants have the opportunity to explore two ethically complex case studies. They will analyze the ethical considerations of conducting research with minority populations within the contemporary contexts of racial and ethnic diversity and social justice.
- Critical Conversations
- Participants will recognize how they can create effective discussions within their research team and with minority communities in order to stimulate openness to research.
- Meaningful Partnerships
- In this module, participants will examine the importance, benefits, and challenges of community partnerships, and will discuss ways to build these partnerships.
- Respectful Recruitment
- This module explores effective and respectful recruitment strategies for use with racial and ethnic minority communities.
- The Informed Consent Conversation
- This module is designed to enhance researchers’ ability to effectively and satisfactorily engage in the informed consent process with racial and ethnic minority participants.
- Conscientious Retention
- Participants will explore the unique factors that contribute to enhanced retention of individuals from racial and ethnic communities in research.
Enhancing Minority Engagement in Research Curriculum
This curriculum was designed for use in minority communities, particularly those whose residents experience significant health disparities. The program will help participants understand how research can improve public health and eliminate health disparities. The goals of the program are to enable participants to engage with health and medical research in their communities and to make informed decisions about participating in research. The five-module program was designed to be led by two facilitators, and includes various didactic and interactive components. Potential audiences include civic groups, faith communities, YMCAs/YWCAs, tribal groups, and others interested in learning more about participating in research.
The curriculum modules are:
- Using Research to Improve Our Health
- The main outcome of this module is for participants to appreciate the contributions of research for improving human health and eliminating health disparities.
- Legacy of the Past
- In this module, participants will recognize how the impacts of past situations of research abuse can affect minority communities today.
- Making an Informed Decision
- Participants will learn what information they need and how to get it to make an informed decision about participating in research.
- Becoming an Informed Consumer
- Participants learn how to interpret health and medical research results reported in the media.
- Getting Involved with Research
- In this section of the curriculum, participants will recognize approaches for getting involved with researchers and research.
We have also developed a Multimedia Resource Center that contains a database of information and media used throughout the site and additional resources that contribute to the better understanding of the topics.