Should I Participate?
There are lots of things to consider when making the decision to participate in health research.
For every study, there are risks and benefits, and these should be considered for each study and for each person. Would you participate in research if you were asked to take an experimental drug? What if you were sick and had few other options? What if you were only asked to answer a few questions? What if you were asked to follow a specific diet? What if the health problem to be studied was one that you feel passionate about? What if the problem was one you see impacting the people around you and your loved ones?
Some people decide to participate in research because they are sick and hope to help uncover a new successful treatment. Others participate because they want to help others in their community. Each story is unique.
Watch the "Participating in a Clinical Trial" video to learn more about health research in the U.S. Then, watch the personal stories from participants and researchers.
Source The Center for Information and Study on Clinical Research Participation (CISCRP) – http://www.ciscrp.org/
Listen to an interview excerpt with Dr. John Ruffin, Founding Director of the National Institute on Minority Health and Disparities (NIMHD).
Source NIMHD – http://www.nimhd.nih.gov/
Hear the stories of four individuals who did decide to participate in a research study and why their participation is so critical to a Researcher’s work.
TOP 5 Reasons African Americans and Latinos Choose to Participate in Research
The Building Trust Research Team asked 2,455 African Americans and Latinos throughout the United States why they would participate in research. Here are the top five reasons they gave:
The national survey was conducted in 2010 by the Building Trust Team with support from the NIH-NIMHD grant 7RC2MD004766.
To help others
To help themselves
They have the disease being studied
A relative or friend has the disease being studied
The researchers were honest about risks
What more do you need to know to make an informed decision about participating in a research study?